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chronic fatigue syndrome an invisible illness... home cfs/m.e support forum forum publishing your experiences c.f.s/m.e symptoms list getting diagnosed cfs/me stress and anxiety managing & treating cfs/m.e cfs/me relaxation techniques energy consumption invisibility within my glass cage flu vaccination mildness & severity of cfs c.f.s/m.e support groups room 101 positivity vs cfs the reality of c.f.s facts and figures the truth !!! journey to understanding struggling to get or keep a job sorry but i need some time out... yippee i now have a new job, but what if? osteopathy and chronic fatigue syndrome/m.e. m.e. is real (petition) guestbook *** amazon, bodykind and donations*** bored and just plainly ignorant... spammers !!! bookmark c.f.s. support & mobility products bathroom aids canes & helpers cushions & pillows wheelchairs chronic fatigue syndrome... hello and welcome. having been a cfs sufferer for many years, i created this website in 2006 because i wanted to communicate with fellow sufferers, sharing information and knowledge of cfs and the various related illnesses . in a short time, the website has grown way beyond my original expectations, and the cfs/me support forum now has getting on for one thousand members. so, what is cfs/me? think back to the worst dose of flu youve ever had - not a bad cold but the real thing. im talking about the sort of flu that makes it almost impossible to get out of bed in the morning - sometimes it is impossible. im talking about the sort of flu that leaves you totally exhausted and ill when all youve done is walk a few yards. im talking about the sort of flu that overwhelms your joints and muscles with excruciating pain, the sort that fills your head with cotton wool so that if you try to read a book, the words mingle confusingly then swim off the page, leaving you feeling dizzy and sick. imagine these symptoms not lasting seven or ten days as with the flu, but for year after miserable year. how would you cope? the above is just touching on some of the symptoms of chronic fatigue syndrome (cfs) fibromyalgia, immune dysfunction syndrome (cfids), myalgic encephalomyelitis (m.e.) post traumatic stress disorder (ptsd) and post viral fatigue syndrome (pvfs) - please see symptoms for a more comprehensive list. as all these labels have very similar characteristics, for simplicitys sake, ill use cfs/me as a catch-all. this condition is poorly diagnosed and commonly misunderstood. many believe that it first emerged in the 1980s when it was dismissively referred to as yuppie flu - simply an excuse for societys high flyers to take time off work due to stress. but this is not a modern day condition at all - florence nightingale was a sufferer, as were many of those she cared for, along with soldiers of world war 1. back then, the condition was treated with the same contempt as it was in the 1980s and, by the uninformed, still is. afflicted soldiers were accused of malingering or cowardice and sent back into battle. the lucky ones were diagnosed with shell-shock and sent home, disgraced. many gulf war veterans became ill and were diagnosed with gulf war syndrome, which is now known as ptsd (post traumatic stress disorder). today, i wonder just how many seriously ill people are diagnosed with hypochondria or just plain laziness and sent home to pull their socks up. the terminology of this range of illnesses may vary and change with time, but the condition itself doesnt. although theres a low to high range of severity, it has the potential to destroy its victims hopes and dreams. it can genuinely ruin the lives of sufferers, carers and families. its an insidious, evil illness. it is estimated that there are around a quarter of a million cfs/me sufferers in the uk alone. cfs/me can affect men, women and children of any age, but commonly strikes between ages twenty to forty. to-date, what causes cfs/me is unknown, though viruses like flu or glandular fever are often involved as triggers, as are traumas such as a major surgical operation. other possible triggers are viral infections reaction to vaccinations exposure to toxins such as pesticides and heavy metals stress causing life events physical injury often though, it materializes for no apparent reason. thankfully, cfs/me is taken a little more seriously these days, but, sadly, it is still poorly understood. this means that sufferers still have to deal with disbelief and the many myths that surround the illness. they are often thought of as being merely tired, but the fatigue felt by a healthy person following a busy day doesnt come remotely close to the profound exhaustion that cfs/me sufferers are forced to contend with day after day after day as they search for a non-existent magic pill that they hope will help them. also, sufferers are often subjected to the belief that theyre just depressed, but mental health issues are only rarely noted pre cfs/me onset. i had been suffering from cfs/me for a long time and had been subjected to the abuses mentioned above, but if i avoided the things i struggled with, i coped. however, following the relapse, i felt that if i hid away from the world, the world would know nothing of my illness, and then id be safe from accusation. if i lived in a world of unreality, perhaps id be well in that world. i lived this life for many months, but eventually accepted my problems for what they were, realising that until i did, they could never be resolved. the fact is that we as sufferers are more or less abandoned by the system, dismissed by parts of the nhs as being lazy or, worse, head-cases needing to pull themselves together. this leads us naturally to believe that we face a lifetime of physical and mental torture, disgracefully ignored by a government that chooses not to fund the necessary research that might lead to a worthwhile treatment even a cure. instead, were often casually diagnosed as depressives and prescribed anti-depressants that make us even more ill, adding further to our long list of symptoms. as i sit here writing this, i wonder just what century were in, and just how long well have to wait before were treated in the way we deserve as seriously ill people needing help. perhaps, the day were waiting for isnt too far away. i hope thats the case. when i was first diagnosed with cfs/me, i, like many other cfs/me sufferers, searched for answers, struggling to come to terms with what was happening to me. but the medical terminology used in the information based websites i visited defeated me. i didnt understand what was being said and i couldnt find a comprehensive list of the symptoms i was suffering. horrifyingly, though, the one phrase that kept cropping up was - cfs/me has no known cure. it was then that i determined to create a personalised website, one that could bring sufferers together for real help, information and genuine support. with the invaluable help of the websites chronic fatigue support team , i achieved my dream, and you are now reading the front page of that website. i feel that its very helpful if carers, family and friends can try to understand just how cfs sufferers must feel. apart from feeling dreadful, they have been through months if not years of uncertainty due to the unsatisfactory diagnosis methodology - see getting diagnosed -and are frightened, lost and, in their minds, alone. this can lead to high anxiety which in turn can lead to other issues like isolating themselves, agoraphobia and avoidance of anything that worsens symptoms or puts them in perceived danger. do please try to imagine how you would feel under those circumstances. the chronic fatigue support team have created a video which is currently being aired on you tube , which hopefully, after watching, will allow others to understand what we as sufferers need to contend with daily. for those who wish to view this video, simply click on the following link- chronic fatigue syndrome support uk . here, i have tried to conve

URL analysis for chronicfatiguesyndrome.me.uk

http://www.chronicfatiguesyndrome.me.uk/getting-diagnosed.html
http://www.chronicfatiguesyndrome.me.uk///canes-and-helpers-1.html
http://www.chronicfatiguesyndrome.me.uk///invisibility.html
http://www.chronicfatiguesyndrome.me.uk///getting-diagnosed.html
http://www.chronicfatiguesyndrome.me.uk///cfs-me-stress-and-anxiety.html
http://www.chronicfatiguesyndrome.me.uk/cfs-me-symptoms-list.html
http://www.chronicfatiguesyndrome.me.uk///managing-and-treating-cfs.html
http://www.chronicfatiguesyndrome.me.uk///cgi-bin/guestbook.cgi
http://www.chronicfatiguesyndrome.me.uk///sorry-but-i-need-some-time-out.html
http://www.chronicfatiguesyndrome.me.uk///osteopathy-and-chronic-fatigue-syndrome-me.html
http://www.chronicfatiguesyndrome.me.uk///wheelchairs-and-mobilators.html
http://www.chronicfatiguesyndrome.me.uk///energy-consumption.html
http://www.chronicfatiguesyndrome.me.uk///positivity-versus-cfs.html
http://www.chronicfatiguesyndrome.me.uk///room-101.html
http://www.chronicfatiguesyndrome.me.uk///cfs-me-symptoms-list.html
meresearch.org.uk
chronicfatiguesyndromeforum.me.uk
your-experiences.chronicfatiguesyndrome.me.uk
forum.chronicfatiguesyndrome.me.uk

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